Amy is a well-known speaker and author on topics such as women’s health and resilience, the advantages of being present at every doctor’s appointment, and the necessity of patient-centric practices in medicine.
She has written papers for the American Journal of Transplantation and the Transplant Infectious Disease literature.
She has served as a designated representative for the American Society of Transplantation, the Scientific Registry of Transplant Recipients, the American Society of Histocompatibility and Immunogenetics, and the United Network for Organ Sharing (UNOS) Executive Board. Nearly 26 years after Amy’s transplant, the donor’s heart died as a result of vasculopathy, an incurable disease that affects many long-lasting transplanted hearts.
Amy’s physicians in New York told her that owing to the severity and complexity of her disease, her best hope in life was to go across the country where she may get state-of-the-art procedures that would allow her to safely have a second transplant there. There was little likelihood that a donor heart would be discovered at that time since she was losing her beating quickly.
When Amy and Scott boarded a plane with cautious optimism, her friends left everything behind and followed in a continual rotation to be at her side in a hospital room in California. While she waited for a donor’s heart, Amy spent the last two and a half months sleeping close to friends every night.
Also Read, Viggo Sorensen, Avivasofia, and Giselle Guilmette.
